I just wanted to send my love to you and all your family. I can totally relate to what you are going through. We lost our 16 day old baby girl Ellie Grace Beaumont to this dreadful disease in May this year. Since then we have been doing everything we can to raise awareness and vital funds for this fantastic charity. We genuinely cannot believe how kind & generous friends, family and the general can be. People have touched our hearts so much and restored our faith in human kind. The only advise I can give you, is keep strong always continue to talk about your gorgeous little boy and remember the happy memories you have. All our love and best wishes, a fellow heartbroken mummy and daddy. Lesley and Richard Beaumont xxx